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New York • Rare/Genetic
People with Prader-Willi Syndrome in New York may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. These programs help cover medical care, daily living costs, and support services.
To qualify for federal disability benefits, individuals with Prader-Willi Syndrome must meet Social Security’s definition of disability. This means the condition must severely limit their ability to work and is expected to last at least 12 months or result in death. For children, the condition must cause marked and severe functional limitations. Adults must show they cannot do substantial work due to their disability. Medical evidence, such as genetic testing and doctor’s reports, is required. Income and asset limits apply for SSI, but not for SSDI. SSDI is based on work credits earned through employment. Both programs require regular reporting of changes in health or income.
In New York, people with Prader-Willi Syndrome may qualify for state-specific programs, including Medicaid waivers and support services. The New York State Office for People With Developmental Disabilities (OPWDD) provides services for individuals with rare and genetic conditions. Eligibility for Medicaid waivers depends on age, income, assets, and functional limitations. The state also offers ABLE accounts for saving without losing benefits. To qualify, individuals must meet both federal and state criteria. Medical documentation is required. New York’s programs aim to support independence, health, and daily living for people with disabilities.
Source: SSA.gov, 2025-11-06, Source: OPWDD, 2025-11-06, Source: NY ABLE, 2025-11-06
Source: OPWDD, 2025-11-06, Source: NY Medicaid, 2025-11-06, Source: NY ABLE, 2025-11-06
The NY ABLE account allows individuals with disabilities to save money without losing benefits. Contributions are tax-free, and funds can be used for disability-related expenses. The account is available to those with a qualifying disability that began before age 26. There are annual and lifetime contribution limits. Funds can be used for housing, education, transportation, and more.
Income limits for SSI and Medicaid vary by program and household size. For SSI, the federal limit is $943 per month for an individual in 2025. Medicaid limits depend on the program and household size. SSDI has no income limit, but there are limits on substantial gainful activity. ABLE accounts have annual contribution limits of $18,000 in 2025.
Source: SSA.gov, 2025-11-06, Source: NY ABLE, 2025-11-06
It is important to report any changes in health, income, or living situation to avoid overpayments. Overpayments can result in repayment or loss of benefits. Report changes promptly to the relevant agencies. Keep records of all communications and payments.
Contact local disability advocates or the Social Security Administration for help with applications. They can guide you through the process and answer your questions.
Prader-Willi Syndrome is a rare genetic disorder that causes developmental delays, low muscle tone, and a constant feeling of hunger. It can lead to obesity and other health problems if not managed properly.
Your child may qualify if Prader-Willi Syndrome causes marked and severe functional limitations. You will need to provide medical evidence and complete an application with Social Security.
SSI is for low-income individuals with limited resources, while SSDI is for those with a qualifying work history. Both provide monthly payments for people with disabilities.
Medicaid waivers provide home and community-based services for individuals with developmental disabilities. They help cover costs for personal care, therapy, and support services.
Contact the New York State Office for People With Developmental Disabilities (OPWDD). They will guide you through the application process and provide information on eligibility.
An ABLE account allows individuals with disabilities to save money without losing benefits. Funds can be used for disability-related expenses like housing, education, and transportation.
Disclaimer: This guide is for informational purposes only. Always consult official sources or a benefits expert for personalized advice.
Yes, adults may qualify for SSDI if they have a qualifying work history, or SSI if they have limited income and resources. Medical evidence is required.
New York offers Medicaid waivers, OPWDD services, special education, and in-home support. These programs help with daily living, employment, and community integration.
Report any changes in health, income, or living situation to Social Security and Medicaid promptly. Keep records of all communications and payments to avoid overpayments.
Contact local disability advocates, the Social Security Administration, or the New York State Office for People With Developmental Disabilities (OPWDD) for help with applications.
