If you live in New York and have epilepsy, you may qualify for federal and state disability benefits. This guide explains SSI, SSDI, New York Medicaid waivers, ABLE accounts, and how to apply for help. Get clear steps and official links to start your application today.
To qualify for federal disability programs like SSI (Supplemental Security Income) and SSDI (Social Security Disability Insurance), you must have a medical condition (like epilepsy) that severely limits your work and is expected to last at least one year or result in death. SSI also has strict income and resource limits. SSDI requires enough work credits. For children with epilepsy, Social Security has special rules for 'child's benefits' if a parent is retired, disabled, or deceased[4]. Always check the Social Security website for the latest rules.
State-specific information is limited for epilepsy benefits in New York. For Medicaid, you must meet New York’s income and resource requirements. The state also offers Home and Community Based Services (HCBS) waivers—these programs help people with disabilities (including epilepsy) stay in their homes with support services. Eligibility details and application steps are managed by the New York State Department of Health and local social services offices. Start with these agencies for the most accurate, up-to-date information.
Start by applying for SSI or SSDI online at the Social Security Administration website. For Medicaid and local services, contact your county Department of Social Services (DSS) or the New York State Department of Health. Gather medical records, proof of income, and ID. For help with applications, contact a local disability rights organization or community legal services.
SSI (Supplemental Security Income): Provides monthly cash assistance to people with disabilities who have limited income and resources. SSDI (Social Security Disability Insurance): Pays benefits to individuals who have worked long enough and paid Social Security taxes. Both programs are run by the federal Social Security Administration[4]. Medicare: Available after you receive SSDI for two years or reach age 65. Child’s Benefits: Children with epilepsy may qualify for benefits on a parent’s Social Security record if the parent is disabled, retired, or deceased[4].
New York Medicaid: Offers health coverage and, for those who qualify, long-term supports through HCBS waivers. These waivers can pay for personal care, respite, and other services to help you live at home. The NY ABLE program lets you save money without losing eligibility for SSI or Medicaid. The Office for People With Developmental Disabilities (OPWDD) provides supports for people with developmental disabilities, which may include some with epilepsy. Local Departments of Social Services manage applications for Medicaid and other assistance programs. Always check directly with these agencies for the most current program details.
A New York ABLE account lets you save up to $18,000 per year (2025 limit) for disability-related expenses without affecting your SSI or Medicaid eligibility. Earnings grow tax-free, and funds can be used for housing, education, health care, and more. Learn more and open an account at the NY ABLE website.
Income limits for SSI in 2025 are about $1,600 per month for an individual, but amounts can change. Medicaid limits depend on your program and household size. Always check the latest numbers with Social Security and your county DSS before applying.
Always report changes in income, assets, or living situation to Social Security and Medicaid. Failing to report can lead to overpayments, which you may have to pay back. Learn more about avoiding overpayments and how to report changes at Social Security and your county DSS.
Local disability rights organizations and legal aid groups offer free help with SSI, SSDI, and Medicaid applications. Don’t face the process alone—reach out for support.
If your income, living situation, or health changes, tell Social Security and Medicaid right away. This helps you avoid owing money back later.
Yes, both programs offer work incentives. You may be able to work part-time and still receive benefits. Income limits apply, so report all earnings to Social Security to avoid overpayments.
No. Your epilepsy must be severe enough to prevent you from working for at least a year. The Social Security Administration will review your medical records to decide.
Waivers provide extra services like personal care, home modifications, and respite care, helping you live at home instead of a facility. Ask your county DSS about available programs.
Yes, children may qualify for SSI or benefits on a parent’s Social Security record if qualifications are met. Always apply and provide full medical documentation.
An ABLE account lets you save money for disability expenses without losing Medicaid or SSI. It’s a tax-advantaged way to build financial security.
It can take several months. You may be denied at first, but you have the right to appeal.
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Contact your county DSS, the NY State Office for People With Developmental Disabilities, or a local disability rights group for free assistance.
File an appeal as soon as possible. You have 60 days from the denial notice to request reconsideration. Get help from an advocate or legal services.
