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New Mexico • Rare/Genetic
People with Rett Syndrome in New Mexico may qualify for federal disability benefits like SSI and SSDI, as well as state programs for health care, food, and financial help. This guide explains eligibility, how to apply, and where to get support.
To get federal disability benefits in New Mexico, you must have a medical condition that meets Social Security’s definition of disability. For SSI, you must have low income and resources. For SSDI, you must have worked and paid Social Security taxes. Rett Syndrome is listed in Social Security’s Blue Book under neurological disorders, so most people with Rett Syndrome qualify if they meet the medical criteria and income/work rules.
New Mexico offers extra help for people with Rett Syndrome. If you get SSI, you may also get Medicaid for health care. Children with Rett Syndrome may qualify for Children’s Medical Services, which helps with medical needs and family support. If you lose SSI because your SSDI payment is too high, New Mexico may still give you Medicaid for up to two months. The state also has a self-insured disability plan for state employees, but this is not for dependents.
An ABLE account lets people with Rett Syndrome save money without losing SSI or Medicaid. You can use the funds for housing, education, health, and more. New Mexico has its own ABLE program. Learn more about ABLE accounts and how to open one in New Mexico.
You must report changes in income, resources, or health to Social Security and the state. This helps avoid overpayments and keeps your benefits active. If you get too much money, you may have to pay it back. Learn how to report changes and avoid overpayments.
Contact a local disability attorney or advocate for help with your application. They can guide you through the process and help you get the benefits you need.
Yes, Rett Syndrome is listed in Social Security’s Blue Book under neurological disorders. Most people with Rett Syndrome qualify for SSI or SSDI if they meet the medical and income/work rules.
You can apply online at SSA.gov, by phone at 1-800-772-1213, or in person at a local Social Security office. You will need medical records and proof of income and resources.
Yes, children with Rett Syndrome may get Medicaid if they meet income and disability rules. New Mexico also has Children’s Medical Services for children with chronic illness or disability.
In 2025, the SGA limit is $1,620/month for non-blind individuals and $2,700/month for statutorily blind individuals. If you earn more than this, you may lose your disability benefits.
New Mexico has a self-insured disability plan for state employees who lose income due to sickness or injury. This plan is not for dependents and requires 12 months of premium payments before benefits start.
People with Rett Syndrome may get SNAP if they meet income rules. Elderly or disabled households already getting the State SNAP Supplement will get $100 extra for food in November 2025.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
Children’s Medical Services helps children with chronic illness or disability, including Rett Syndrome, with medical care and family support. It is for children under 21 and adults with cystic fibrosis.
Yes, New Mexico may extend Medicaid to people who lose SSI because their SSDI payment is just above the SSI limit. You may get Medicaid for up to two months to help you apply for other coverage.
You must report changes in income, resources, or health to Social Security and the state. This helps avoid overpayments and keeps your benefits active. Learn how to report changes and avoid overpayments.
An ABLE account lets people with Rett Syndrome save money without losing SSI or Medicaid. You can use the funds for housing, education, health, and more. New Mexico has its own ABLE program.
