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Nevada • Rare/Genetic
Nevada residents with Cystic Fibrosis (CF) may qualify for federal disability benefits (SSDI/SSI), Medicaid, and state assistance. This guide explains eligibility, how to apply, benefit amounts, and important Nevada programs for CF—helping you get the financial and medical support you need.
Cystic Fibrosis is recognized by Social Security as a qualifying disability if it severely limits daily activities and work for at least 12 months or is expected to result in death[4][6]. There are two main federal programs: SSDI (for those with a work history) and SSI (for low-income individuals, regardless of work history)[1][5]. Both require you to meet Social Security’s strict definition of disability. For SSDI, you must have enough work credits earned through past employment[1][6]. SSI has income and asset limits—for 2025, the asset limit is $2,000 for an individual (excluding home and car), and income limits vary by state supplements[3]. Adults disabled since childhood (“disabled adult children”) may also qualify for SSDI based on a parent’s work record[3].
State-specific information is limited; start here: Nevada’s main disability programs are federally run, but the state may offer supplemental services for health, food, and housing for Cystic Fibrosis patients[1]. Nevada Medicaid covers many treatments and medications for CF, and HCBS (Home and Community Based Services) waivers can help with in-home care. To find extra help, contact Nevada Legal Services or check with the Nevada Department of Health and Human Services for local programs[7]. CF-specific state support is not detailed online, but connecting with local nonprofits, CF care centers, and state agencies can uncover additional resources for treatment, transportation, and family support.
Start your application for Cystic Fibrosis benefits in Nevada by collecting medical records that prove your diagnosis and how CF affects your daily life. Apply online at ssa.gov for SSDI and SSI, or call 1-800-772-1213 to start over the phone[1][5]. For Nevada Medicaid, apply online through Access Nevada or contact your local Division of Welfare and Supportive Services office. Gather proof of income, assets, and residency. If you need help, Nevada Legal Services offers free assistance with applications[4].
Social Security Disability Insurance (SSDI) provides monthly benefits to Nevadans with Cystic Fibrosis who have a significant work history. In 2025, monthly benefits range from $967 (minimum) to $4,018 (maximum), based on your earnings record[3]. Supplemental Security Income (SSI) is for low-income individuals with CF, regardless of work history. The 2025 maximum federal SSI payment is $967 per month, with strict income and asset limits[3]. You may be eligible for both SSDI and SSI if you meet each program’s rules[5]. Medicare is available after 24 months of SSDI eligibility, covering hospital and medical care. Medicaid is often available immediately for SSI recipients or those with low income, providing comprehensive health coverage, including prescriptions and therapies specific to Cystic Fibrosis[5].
Nevada’s main support for Cystic Fibrosis is through Medicaid, which covers most treatments, medications, and hospitalizations. Nevada offers Home and Community Based Services (HCBS) waivers, which can pay for in-home care, personal care assistants, and medical equipment, helping people with CF live more independently[7]. The Medicaid waiver application is separate from regular Medicaid and may have waiting lists. Nevada also provides general assistance programs for food (SNAP), housing, and utility help—visit the Nevada Department of Health and Human Services for details. While there is no state-specific disability payment, CF patients in Nevada can access statewide health navigation, 211 information and referral, and local nonprofits for additional support. Always check with your CF care team for the latest on patient assistance programs and community resources.
ABLE accounts allow Nevadans with Cystic Fibrosis to save up to $100,000 without affecting SSI eligibility. These tax-advantaged accounts can pay for qualified disability expenses, like medical care, education, housing, and transportation. To open an ABLE account, you must have become disabled before age 26, as required by federal law. See our ABLE Accounts guide for details[Internal Link: ABLE Accounts].
SSI income limits are strict: in 2025, the federal maximum is $967/month for an individual, but this can be reduced if you have other income[3]. SSDI has no income limit, but there is a Substantial Gainful Activity (SGA) limit: in 2025, you can earn up to $1,620/month (non-blind) without losing benefits; for blind individuals, it’s $2,700/month[2][8]. Medicaid in Nevada also has income limits; some CF patients may qualify even if they earn a bit more, thanks to medically needy programs or waiver exceptions.
If your income, assets, or living situation changes, you must report it promptly to Social Security and Nevada Medicaid—otherwise, you could be overpaid and have to pay money back[4]. Always keep records of your earnings, medical expenses, and any changes in your household. If you get a notice about an overpayment, you can request a waiver or a payment plan. See our guide on Avoiding Overpayments & Reporting Changes for more tips[Internal Link: Avoiding Overpayments & Reporting Changes].
Cystic Fibrosis care centers in Nevada often know about local grants, copay programs, and free transportation for clinic visits. They can also help you connect with other families facing similar challenges.
Yes, adults with Cystic Fibrosis in Nevada may qualify for SSI if they meet Social Security’s disability rules, have very limited income and assets, and their CF is expected to last at least 12 months or result in death[1][3][4].
For SSDI, you cannot earn more than $1,620/month (2025) in gross wages or you risk losing your benefits. For SSI, any income (including SSDI) reduces your SSI payment, and you must stay under strict asset limits[2][3][4].
Yes, children with CF under age 18 may qualify for SSI if the family’s income and assets are low enough and the CF severely limits the child’s activities. Medical documentation from a CF specialist is critical[1][5].
Yes, Nevada Medicaid covers most CF prescriptions, therapies, and hospitalizations. Some CF-specific drugs may require prior authorization. HCBS waivers may cover additional in-home services[7].
You have the right to appeal within 60 days. Gather more medical evidence, ask your doctors for detailed letters, and consider getting help from Nevada Legal Services or a disability advocate[4].
Yes, if you meet the rules for both programs (called “concurrent benefits”), your SSDI may reduce your SSI, but you could still get some payment from each program[3][5].
Disclaimer: This guide is for informational purposes only and is not legal advice. Laws and benefits change; always check with official agencies for the latest information.
ABLE accounts let you save for disability expenses without losing SSI. For CF, qualified expenses include medical care, therapies, education, and housing. You must have developed your disability before age 26 to qualify[Internal Link: ABLE Accounts].
There are no CF-specific state cash benefits, but Medicaid waivers and general assistance programs can help with medical, food, and housing needs. Local CF care centers and nonprofits may offer grants or help with copays[7].
Medicaid is based on income and covers most CF treatments; Medicare is for those over 65 or after 24 months on SSDI. Some people with CF can have both, which helps cover all their medical needs[Internal Link: Medicaid vs Medicare].
Contact Social Security and Medicaid immediately if your income, living situation, or health changes. Failing to report can lead to overpayments, which you may have to pay back[4].
