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Minnesota • Rare/Genetic
People with Prader-Willi Syndrome in Minnesota can access federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and key support programs.
To qualify for federal disability benefits, Prader-Willi Syndrome must meet Social Security Administration (SSA) criteria for disability. Adults must show a condition that prevents substantial gainful activity and is expected to last at least 12 months or result in death. Children under 18 may qualify if their condition severely limits daily activities. Adults with a disability that began before age 22 may be eligible for Disabled Adult Child (DAC) benefits based on a parent’s Social Security record. Applicants must not earn more than the substantial gainful activity limit, which is $1,620 per month in 2025 (or $2,700 if blind)[^4].
In Minnesota, people with Prader-Willi Syndrome can access Medicaid waivers for home and community-based services if they meet financial and medical criteria. The Essential Community Supports Program and Family Support Grant help families access services and prevent out-of-home placement. Minnesota also expanded ABLE account eligibility to those whose disability began before age 46, effective January 1, 2025. State-specific changes to public safety disability benefits may affect some families, but most people with Prader-Willi Syndrome will qualify for standard state and federal programs[^2][^3].
ABLE accounts are available in Minnesota for people whose disability began before age 46. These accounts allow individuals with disabilities to save money without losing eligibility for means-tested benefits like SSI and Medicaid. Contributions are tax-free, and funds can be used for qualified disability expenses[^2].
Income limits for SSI and Medicaid vary by program and household size. For SSI, the federal benefit rate is $943 per month for an individual in 2025. Medicaid income limits are higher and vary by program. Check the Minnesota Department of Human Services website for current guidelines[^3].
It is important to report changes in income, resources, or living situation to avoid overpayments. Overpayments can result in repayment demands and loss of benefits. See the guide on avoiding overpayments and reporting changes for more information[^5].
Contact Disability Hub MN for free expert help with benefits applications and planning. They can guide you through the process and help you navigate the system.
People with Prader-Willi Syndrome may qualify for SSI, SSDI, and Medicaid. Eligibility depends on medical criteria and financial need. Children may also qualify for benefits based on a parent’s Social Security record.
Apply for Medicaid waivers through your county human services office. You will need to provide medical records and proof of income. Disability Hub MN can help with the application process.
An ABLE account allows people with disabilities to save money without losing benefits. Open an account through the Minnesota ABLE program website. Eligibility requires a disability that began before age 46.
The Family Support Grant provides state cash grants to families of children with disabilities. The goal is to prevent out-of-home placement and promote family health and social well-being.
Prader-Willi Syndrome may qualify for SSDI if it meets SSA criteria for disability. Adults must show a condition that prevents substantial gainful activity and is expected to last at least 12 months or result in death.
Minnesota offers home care services for people with disabilities, including medical and health-related services and assistance with day-to-day activities. These services can be accessed through Medicaid waivers.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Contact Disability Hub MN for free expert help. They can guide you through the application process and help you navigate the system.
Income limits for SSI and Medicaid vary by program and household size. For SSI, the federal benefit rate is $943 per month for an individual in 2025. Medicaid income limits are higher and vary by program.
Yes, you can work while receiving disability benefits. There are work incentives and programs to help you keep your benefits while you work. See the guide on SSI/SSDI work incentives for more information.
If your application is denied, you can appeal the decision. Seek help from Disability Hub MN or a legal aid organization to guide you through the appeals process.