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Minnesota • Rare/Genetic
People in Minnesota with Ehlers-Danlos Syndrome (EDS) may qualify for federal and state disability benefits. These include SSI, SSDI, Medicaid, and special programs. This guide explains eligibility, how to apply, and where to get help.
To qualify for federal disability benefits like SSI or SSDI, you must have a medical condition that meets Social Security's definition of disability. Ehlers-Danlos Syndrome (EDS) is a rare genetic disorder that can cause chronic pain, joint instability, and other serious symptoms. If your EDS is severe enough to prevent you from working, you may qualify for SSI or SSDI. You must also meet income and resource limits for SSI, and work history requirements for SSDI. The Social Security Administration (SSA) reviews your medical records and work history to decide if you qualify[1].
In Minnesota, people with Ehlers-Danlos Syndrome may qualify for state-specific programs like Medical Assistance (Medicaid), Minnesota Supplemental Aid, and Housing Support. Eligibility depends on your income, assets, and medical needs. Minnesota also offers Medicaid waivers for home and community-based services, which can help with daily living needs. The state recently updated rules for some public safety workers, but these do not affect most people with EDS. If you are under age 46, you may qualify for an ABLE account to save for disability-related expenses without losing benefits[2].
ABLE accounts let people with disabilities save money without losing benefits. In Minnesota, you can open an ABLE account if your disability began before age 46. The account can be used for disability-related expenses like medical care, education, and housing. Contributions are tax-free, and earnings grow tax-free[11].
Income limits for Minnesota benefits change each year. For 2025, the limits include the Social Security Cost of Living Adjustment (COLA). Check the latest guidelines on DB101 Minnesota or contact your county human services office for current numbers[12].
If your income, resources, or medical condition changes, you must report it to avoid overpayments. Overpayments can lead to debt and loss of benefits. Use the Avoiding Overpayments & Reporting Changes guide for tips and tools[13].
Disability Hub MN offers free expert help, benefits planning, and support for people with disabilities. Chat, call, or email them for assistance.
Yes, Ehlers-Danlos Syndrome can qualify for disability benefits if it is severe enough to prevent you from working. You must meet federal and state eligibility rules for SSI, SSDI, or Minnesota state programs.
You can apply for SSI or SSDI online at ssa.gov, by phone at 1-800-772-1213, or at a local Social Security office. You will need medical records and proof of income.
Minnesota offers Medical Assistance (Medicaid), Minnesota Supplemental Aid, Housing Support, and Medicaid waivers for home and community-based services. Children may also qualify for adaptive swimming lessons.
Yes, Disability Hub MN offers free expert help, benefits planning, and support for people with disabilities. You can chat, call, or email them for assistance.
An ABLE account is a tax-advantaged savings account for people with disabilities that began before age 46. It can be used for disability-related expenses without losing benefits.
You must report changes in your income, resources, or medical condition to avoid overpayments. Use the Avoiding Overpayments & Reporting Changes guide for tips and tools.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always check with official sources for the most current information.
Recent law changes affect health insurance for public safety workers with duty disabilities, but these do not apply to most people with Ehlers-Danlos Syndrome.
The Waiver Reimagine Advisory Task Force provides stakeholder input and guidance for changes to Minnesota’s Medicaid waiver system, which helps people with disabilities live in the community.
Yes, Minnesota’s CFSS program covers adaptive swimming lessons for children at risk of drowning due to a disability.
You can find more information on the Disability Hub MN website, DB101 Minnesota, and the Minnesota Department of Human Services website.
