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Michigan • Rare/Genetic
Rett Syndrome is a rare genetic disorder that can qualify for federal and state disability benefits in Michigan. This guide covers eligibility, how to apply, and key programs for families affected by Rett Syndrome.
To qualify for Social Security Disability Insurance (SSDI), you generally need 40 work credits, with 20 earned in the last 10 years before your disability began. Supplemental Security Income (SSI) is for those with limited income and resources, regardless of work history. Rett Syndrome is listed as a qualifying condition under the Compassionate Allowances program, which can fast-track your application. Medical documentation is required to prove disability status[1].
In Michigan, adults with Rett Syndrome may qualify for State Disability Assistance (SDA) if they meet income and disability requirements. SDA provides cash assistance to disabled adults who are U.S. citizens or qualified legal immigrants and live in Michigan. Non-citizen adults must have permanent resident status or VAWA for five years or more. Asylees, refugees, and certain other categories are also eligible. SDA cannot be received alongside other state cash assistance programs[3].
Michigan residents with Rett Syndrome can open a MiABLE account to save for disability-related expenses tax-free. Earnings grow tax-free, and withdrawals for qualified expenses are not taxed. Single filers can deduct up to $5,000, and joint filers up to $10,000 for contributions. Friends and family can contribute using the Ugift® service[5].
For SSDI, the Substantial Gainful Activity (SGA) limit for non-blind individuals is projected to be $1,530 per month in 2025. For blind individuals, it is projected to be $2,550 per month. SSI has different income limits based on financial need[1]. SDA has its own income limits, which can be found on the MDHHS website[3].
It is important to report any changes in income, employment, or living situation to SSA and MDHHS to avoid overpayments. Overpayments can result in repayment obligations and affect future benefits. Keep records of all changes and communications with agencies[6].
Rett Syndrome is on the Compassionate Allowances list, which can speed up your SSDI/SSI application. Make sure to mention this when applying.
Open a MiABLE account to save for disability-related expenses tax-free. Friends and family can contribute using the Ugift® service.
Rett Syndrome is a rare genetic disorder that affects brain development, leading to severe physical and cognitive disabilities. It primarily affects girls and is recognized by Social Security as a qualifying disability.
Gather medical records and apply online at SSA.gov or at your local Social Security office. Rett Syndrome is on the Compassionate Allowances list, which can speed up the process.
SDA is a cash assistance program for eligible disabled adults in Michigan. You must be a U.S. citizen or qualified legal immigrant and meet income and disability requirements.
Yes, Michigan offers Medicaid waivers for eligible individuals with disabilities, including Rett Syndrome. These waivers can provide home care, respite, and other supports.
A MiABLE account is a tax-advantaged savings account for Michigan residents with disabilities. It allows tax-free savings for disability-related expenses and can be funded by friends and family.
Report any changes in income, employment, or living situation to SSA and MDHHS. Keep records of all changes and communications with agencies to avoid overpayments.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Yes, non-citizen adults with permanent resident status or VAWA for five years or more are eligible for SDA. Asylees, refugees, and certain other categories are also eligible.
The Compassionate Allowances program fast-tracks SSDI/SSI claims for severe conditions like Rett Syndrome. Claims are processed faster, providing quicker access to benefits.
The SGA limit for non-blind individuals is projected to be $1,530 per month in 2025. For blind individuals, it is projected to be $2,550 per month.
SSDI is for those who have worked and paid Social Security taxes. SSI is for those with limited income and resources, regardless of work history.
