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Michigan • Rare/Genetic
People with Prader-Willi Syndrome in Michigan may qualify for federal disability benefits like SSDI and SSI, state cash aid, Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and where to get help.
To qualify for Social Security Disability Insurance (SSDI), you generally need 40 work credits, with 20 earned in the last 10 years before your disability began. For Supplemental Security Income (SSI), you must have limited income and resources, and meet the Social Security Administration’s definition of disability. Children with Prader-Willi Syndrome may qualify for SSI if their condition meets the criteria for a disabling condition. Adults with a disability that began before age 22 may be eligible for benefits based on a parent’s Social Security record, even if they never worked themselves. The SSA’s Compassionate Allowances program can speed up approval for severe conditions like Prader-Willi Syndrome if they are on the list [ssa.gov, 2025-04-15].
In Michigan, adults with Prader-Willi Syndrome may qualify for State Disability Assistance (SDA) if they meet income and disability requirements. SDA is for adults who are disabled and unable to work. You must be a U.S. citizen or qualified legal immigrant and live in Michigan. Non-citizen adults must have permanent resident status or VAWA for five years or more. Asylees, refugees, and certain other immigrants may also qualify. Medical documentation is required to prove disability. Michigan also offers Medicaid waivers for home and community-based services, which can help with care and support for people with Prader-Willi Syndrome. These waivers may cover things like personal care, respite, and therapy services [mdhhs.michigan.gov, 2025-04-15].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI, Medicaid, or other benefits. Michigan has its own ABLE program. You can open an account online and contribute up to $18,000 per year (2025 limit). Funds can be used for things like housing, education, transportation, and personal support services. ABLE accounts are a good option for people with Prader-Willi Syndrome who want to save for the future without risking their benefits [michigan.gov/able, 2025-04-15].
If your income, living situation, or health changes, you must report it to the SSA or MDHHS. Not reporting changes can lead to overpayments and penalties. Keep records of all reports and communications. If you get an overpayment notice, contact the agency right away to discuss repayment options. You may be able to appeal or set up a payment plan. Reporting changes helps keep your benefits accurate and avoids future problems [ssa.gov, 2025-04-15; mdhhs.michigan.gov, 2025-04-15].
Contact your local MDHHS office or a disability advocate for free help with applications and appeals. Many agencies offer support in multiple languages.
Yes, children with Prader-Willi Syndrome may qualify for SSI if their condition meets the SSA’s definition of disability. They must have limited income and resources. Medical documentation is required to prove the disability.
Prader-Willi Syndrome is not always listed, but some severe cases may qualify for fast-tracked approval. Check the SSA’s Compassionate Allowances list or ask your doctor if your case is severe enough for expedited review.
You can apply for SDA online at Michigan’s MI Bridges portal or at your local MDHHS office. You’ll need to provide proof of disability, income, and residency. Medical records are required.
In 2025, the SGA limit for SSDI is $1,620 per month for non-blind individuals. Earning above this may affect your benefits. The limit is higher for blind individuals.
Yes, you can work and earn up to the SGA limit without losing SSDI. SSI has lower income limits. Work incentives and trial work periods can help you test your ability to work without losing benefits.
Medicaid waivers in Michigan provide home and community-based services for people with disabilities. They can cover personal care, therapy, respite, and more, helping people with Prader-Willi Syndrome live at home.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for your specific situation.
You can open an ABLE account online through Michigan’s ABLE program. You’ll need proof of disability and a Social Security number. Contributions are limited to $18,000 per year in 2025.
You must report any income changes to the SSA or MDHHS. Not reporting can lead to overpayments and penalties. Reporting helps keep your benefits accurate.
Qualified legal immigrants, asylees, refugees, and certain other categories may be eligible for SDA and Medicaid. Non-citizens must meet specific residency and status requirements.
You can get help from local MDHHS offices, legal aid organizations, or disability advocates. Many agencies offer free advice and support with applications and appeals.
