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Michigan • Rare/Genetic
People with Fragile X Syndrome in Michigan may qualify for federal disability benefits like SSI and SSDI, as well as state programs such as Medicaid and State Disability Assistance. Eligibility depends on age, income, assets, and disability severity. This guide explains how to apply and what support is available.
Fragile X Syndrome is a genetic condition that can cause intellectual and developmental disabilities. The Social Security Administration (SSA) may consider it a qualifying disability for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI) if it meets their criteria.
The SSA uses a medical listing for intellectual disability (Listing 12.05) and may also consider Fragile X Syndrome under other listings if symptoms are severe.
SSA Disability Qualifications (accessed 2025-11-06)
In Michigan, people with Fragile X Syndrome may qualify for several state and federal programs:
Eligibility for SDA and Medicaid waivers depends on income, assets, and disability severity. Fragile X Syndrome is recognized as a qualifying condition for these programs if it causes significant functional limitations.
Michigan SDA Program (accessed 2025-11-06) Michigan Medicaid Waivers (accessed 2025-11-06)
Step 1: Gather Documents
Step 2: Apply for SSI/SSDI
Step 3: Apply for SDA and Medicaid
Step 4: Apply for Medicaid Waivers
Step 5: Explore ABLE Accounts
Step 6: Report Changes
SSA Apply for Disability (accessed 2025-11-06) (accessed 2025-11-06) (accessed 2025-11-06)
SSA Disability Programs (accessed 2025-11-06)
Michigan SDA Program (accessed 2025-11-06) Michigan Medicaid Waivers (accessed 2025-11-06) Michigan ABLE Program (accessed 2025-11-06)
ABLE accounts allow people with disabilities onset before age 26 to save money tax-free for disability-related expenses. Michigan residents can open an ABLE account through the Michigan ABLE Program. Funds do not count toward SSI asset limits and can be used for education, housing, transportation, and more.
Michigan ABLE Program (accessed 2025-11-06)
SSA SGA Limits (accessed 2025-11-06) Michigan SSI/SSDI (accessed 2025-11-06)
It is important to report changes in income, assets, or living situation to avoid overpayments. Overpayments can result in repayment demands or loss of benefits. Report changes to SSA online, by phone, or in person. Michigan also requires reporting changes for SDA and Medicaid.
SSA Reporting Changes (accessed 2025-11-06) Michigan Reporting Changes (accessed 2025-11-06)
Contact your local Area Agency on Aging or Community Mental Health Services for help with applications and eligibility questions.
Yes, a child with Fragile X Syndrome can qualify for SSI if their condition causes significant functional limitations and their family meets income and asset limits. SSI provides monthly cash benefits and automatic Medicaid eligibility.
Yes, an adult with Fragile X Syndrome may qualify for SSDI if they have a work history or as a Disabled Adult Child (DAC) on a parent’s record if disabled before age 22.
SDA is a state program that provides cash assistance to adults with disabilities who do not qualify for SSI or SSDI. Eligibility depends on income, assets, and disability severity.
SSI recipients automatically qualify for Medicaid. Others can apply through Michigan’s MI Bridges portal. Medicaid provides health coverage for people with disabilities.
Medicaid waivers provide home and community-based services for people with disabilities, such as personal care, respite care, and supported employment. Apply through local agencies.
Yes, you may qualify for both SSI and SSDI if your SSDI payment is low and you meet SSI financial requirements. This is called concurrent benefits.
Disclaimer: This guide provides general information and is not legal advice. Eligibility and benefits may change. Always check with official agencies for the most current information.
An ABLE account is a tax-advantaged savings account for people with disabilities onset before age 26. Funds do not count toward SSI asset limits and can be used for disability-related expenses.
Yes, you must report changes in income, assets, or living situation to avoid overpayments. Report changes to SSA and Michigan agencies as required.
Some programs, like SDA, have immigration requirements. U.S. citizens and certain qualified immigrants may be eligible. Check with local agencies for details.
You can get help from local agencies, legal aid, or disability advocacy groups. Michigan’s Disability Resource Network and Area Agencies on Aging offer support.
