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Massachusetts • Rare/Genetic
People with Williams Syndrome in Massachusetts may qualify for federal disability benefits like SSI and SSDI, as well as state programs such as Medicaid waivers and ABLE accounts. Eligibility depends on medical evidence, income, and work history. This guide explains how to apply and what supports are available.
To qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI), you must have a medical condition that meets the Social Security Administration’s (SSA) definition of disability. For Williams Syndrome, this means providing medical records showing how the condition limits your ability to work or function. SSDI is for those who have worked and paid Social Security taxes, while SSI is for people with limited income and resources, regardless of work history. Both programs require a detailed review of medical evidence, job history, and financial information. The SSA uses a strict process to decide if your condition is severe enough to qualify.
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In Massachusetts, eligibility for SSI and SSDI is determined by MassAbility Disability Determination Services (DDS). DDS reviews medical records, job history, education, and other evidence to decide if you meet federal and state criteria. For Williams Syndrome, DDS may consult with medical and mental health professionals to assess how the condition affects daily life and work ability. State-specific programs like Medicaid waivers may have additional requirements, such as income limits or a need for home and community-based services. Always provide complete and up-to-date information to avoid delays.
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ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. In Massachusetts, you can open an ABLE account through the state’s program. Contributions are tax-free, and withdrawals for qualified expenses are not taxed. The account can be used for education, housing, transportation, and more. There are annual and lifetime contribution limits.
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For SSI, the federal income limit in 2025 is $943 per month for an individual. For SSDI, there is no strict income limit, but you cannot earn more than the Substantial Gainful Activity (SGA) threshold, which is $1,620 per month in 2025 ($2,700 for blind recipients). Medicaid and Medicaid waiver income limits vary by program and household size.
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You must report any changes in income, work, or health to avoid overpayments. Overpayments can lead to repayment demands or loss of benefits. Report changes promptly to MassAbility DDS or the SSA. Keep records of all reports and communications.
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Contact MassAbility DDS for help with your application. They can answer questions and guide you through the process.
Yes, Williams Syndrome can qualify for SSI or SSDI if it meets the Social Security Administration’s criteria for disability. You must provide medical evidence showing how the condition limits your ability to work or function.
The Substantial Gainful Activity (SGA) limit for SSDI in 2025 is $1,620 per month for non-blind individuals and $2,700 for blind recipients. Earning above this limit may affect your benefits.
To apply for Medicaid waivers, contact the Department of Developmental Services or MassHealth. You will need to provide medical and financial information to determine eligibility.
An ABLE account is a tax-advantaged savings account for people with disabilities. It lets you save for disability-related expenses without losing SSI or Medicaid benefits.
Yes, you must report any changes in income, work, or health to avoid overpayments. Report changes promptly to MassAbility DDS or the SSA.
SSDI recipients can use work incentives like the Trial Work Period and Extended Period of Eligibility. These allow you to work and earn income while keeping benefits for a limited time.
Disclaimer: This guide is for informational purposes only. Always consult with a benefits expert or agency for personalized advice.
The decision time varies, but it can take several months. Providing complete and accurate information can help speed up the process.
Yes, some people qualify for both SSI and SSDI. SSI is for those with limited income and resources, while SSDI is for those who have worked and paid Social Security taxes.
If your application is denied, you can appeal the decision. Contact MassAbility DDS for information on the appeals process.
Massachusetts offers Medicaid waivers, MassHealth, and ABLE accounts for people with disabilities, including Williams Syndrome. Eligibility depends on medical and financial criteria.
