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Maine • Rare/Genetic
People with Rett Syndrome in Maine can access federal disability benefits like SSI and SSDI, plus state programs for housing, independent living, and advocacy. There is no state-run disability income program, but Maine offers supportive services and Medicaid waivers for those who qualify.
Contact Disability Rights Maine or Maine’s Independent Living Services for free advocacy and support during the application process.
Yes, children with Rett Syndrome may qualify for SSI if their family meets income and asset limits. Children may also qualify for Medicaid waivers for home and community-based services. Contact the Maine Department of Health and Human Services for more information [^4].
SSI is for people with limited income and assets, including children and adults who have never worked. SSDI is for people who have worked and paid Social Security taxes but can no longer work due to a disability. Both programs provide monthly payments and health coverage [^1].
Maine does not have a state disability income program. Residents must apply for federal benefits through the Social Security Administration or purchase private insurance. Maine does offer Medicaid waivers and supportive housing for people with disabilities [^3].
Contact the Maine Department of Health and Human Services to apply for Medicaid waivers. These waivers can help pay for home and community-based services for people with Rett Syndrome. You will need to provide medical and financial information [^4].
The Section 811 PRA Program provides permanent supportive housing for extremely low-income people with disabilities, including those with Rett Syndrome. The program combines affordable housing with support services. Contact MaineHousing for more information [^6].
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Yes, adults with Rett Syndrome who became disabled before age 22 may qualify for Disabled Adult Child (DAC) benefits based on a parent’s Social Security record, even if they never worked. Contact the Social Security Administration for more information [^2].
The Independent Living Services Program helps people with significant disabilities live more independently through advocacy, training, and referrals. Services are subject to funding availability. Contact the Maine Department of Health and Human Services for more information [^5].
Report any changes in income or living situation to the Social Security Administration to avoid overpayments. Overpayments can result in benefit reductions or repayment. Learn more about reporting changes on the SSA website [^10].
Yes, there are work incentives that allow people with disabilities to work and keep some or all of their benefits. MaineHealth Vocational Services offers free counseling on how work affects benefits for Maine residents [^11].
Disability Rights Maine provides advocacy and legal assistance for people with disabilities, including those with Rett Syndrome. The Independent Living Services Program also offers advocacy and support [^9].
