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Maine • Neurodegenerative
Maine residents with Huntington’s Disease can access federal disability benefits like SSI and SSDI, Medicaid, and supportive housing. There is no state-run disability program, but Maine offers resources for independent living, advocacy, and work incentives. The application process is complex, but help is available.
People with Huntington’s Disease in Maine can qualify for Social Security Disability Insurance (SSDI) or Supplemental Security Income (SSI) if they meet federal criteria. SSDI is for those who have worked and paid Social Security taxes, usually requiring at least 10 years of work. SSI is for those with limited income and assets, including children and adults who have never worked enough for SSDI. Both programs require a medical condition that prevents substantial work and is expected to last at least 12 months or result in death. Huntington’s Disease is considered a qualifying condition by the Social Security Administration (SSA) due to its progressive nature and impact on daily functioning [1].
SSDI provides monthly payments based on your work history and taxes paid, and includes Medicare after a waiting period. SSI provides payments based on financial need and includes Medicaid coverage. Both programs have strict rules about income, assets, and work activity. If you receive both, both sets of rules apply [1][7].
Maine does not have a state-run disability income program. Instead, residents rely on federal programs like SSDI and SSI for financial support. However, Maine offers several supportive services for people with disabilities, including Huntington’s Disease. These include independent living programs, vocational rehabilitation, advocacy, and assistive technology resources. The Maine Department of Health and Human Services and MaineHousing provide access to supportive housing and case management for those with severe disabilities. MainePERS offers disability retirement for public employees who can no longer work due to a qualifying condition, but this is separate from federal disability programs [2][3][5].
Maine residents with Huntington’s Disease may also qualify for Medicaid waivers, which provide home and community-based services. These waivers help people live independently and access necessary care. Eligibility for waivers depends on income, assets, and functional limitations. The state also offers work incentives and counseling for those considering returning to work while receiving benefits [4][5].
Maine residents with Huntington’s Disease can open an ABLE account to save for disability-related expenses without losing eligibility for SSI or Medicaid. ABLE accounts allow tax-free savings up to $100,000 without affecting SSI eligibility. Contributions are limited to $18,000 per year (2025). Funds can be used for housing, education, transportation, and other qualified expenses. For more information, visit the ABLE National Resource Center or the Maine ABLE program website [internal_link: ABLE Accounts].
SSI has strict income and asset limits. In 2025, the federal SSI limit is $943 per month for an individual and $1,415 for a couple. SSDI has no income limit, but substantial earnings may affect eligibility. For Medicaid, income limits vary by program and household size. Work incentives may allow higher earnings while keeping benefits. For details, use the SSI Income Estimator or consult a benefits counselor [7][internal_link: SSI Income Estimator].
If you receive more benefits than you are entitled to, you may have to repay the overpayment. Report changes in income, living situation, or health status to the SSA or Maine DHHS promptly. Failure to report can result in penalties or loss of benefits. For help understanding reporting rules, see the guide on Avoiding Overpayments & Reporting Changes [internal_link: Avoiding Overpayments & Reporting Changes].
Contact MaineHealth Vocational Services for free work incentive counseling. They can help you understand how working affects your benefits and guide you through the application process.
The Disability Rights Center and MaineCITE offer advocacy, information, and assistive technology resources for people with disabilities in Maine.
Yes, Huntington’s Disease qualifies for federal SSDI and SSI if you meet work and income requirements. Maine does not have a state disability program, but supportive services are available.
Apply online at SSA.gov, by phone, or in person at a local Social Security office. You’ll need medical records and personal information. Most applications are denied at first, but you can appeal.
SSDI is for those who have worked and paid Social Security taxes. SSI is for those with limited income and assets. Both provide monthly payments and health coverage.
No, Maine does not have a state disability income program. Residents rely on federal SSDI and SSI for financial support.
Yes, work incentives allow you to work and keep some benefits. MaineHealth Vocational Services offers free counseling for Maine residents with questions about working and benefits.
MaineHousing offers the Section 811 PRA program, which provides permanent supportive housing for extremely low-income people with disabilities, including Huntington’s Disease.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
Contact the Independent Living Services Program or the Disability Rights Center for advocacy, information, and referral services.
Yes, ABLE accounts allow tax-free savings for disability-related expenses without affecting SSI or Medicaid eligibility. Contributions are limited to $18,000 per year (2025).
Most applications are denied at first. You can appeal within 60 days. Your chances of approval increase on appeal. Maine residents can request a hearing in Portland or Bangor.
Yes, MaineCITE and ALLTech provide access to assistive technology for children and adults with disabilities, including those with Huntington’s Disease.
