People with Williams Syndrome in Kentucky may qualify for federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. These programs help cover medical care, daily living costs, and support independence.
To qualify for Social Security Disability Insurance (SSDI), you must have a severe disability that stops you from working and have paid into Social Security through work. For Supplemental Security Income (SSI), you must have low income and limited resources, and your disability must be severe enough to limit your daily activities. Both programs use the Social Security Administration’s definition of disability, which means your condition must last at least a year or result in death. Williams Syndrome can qualify if it causes serious health or developmental problems that meet these rules [9].
For 2025, the Substantial Gainful Activity (SGA) limit is $1,620 per month for non-blind individuals and $2,700 for those considered blind. If you earn more than this, you may not qualify for SSDI or SSI [9].
In Kentucky, children and adults with Williams Syndrome may qualify for Medicaid waivers that cover home and community-based services, such as therapy, personal care, and respite care. These waivers help people live at home instead of in institutions. To get a waiver, you must meet both medical and financial rules set by the state. Kentucky also offers special education services and early intervention for children with developmental disabilities. Adults with Williams Syndrome may get job training and support through the state’s vocational rehabilitation program. If you get SSI, you may also qualify for Kentucky Medicaid without a separate application [2].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. In Kentucky, you can open an ABLE account through the state’s ABLE program. The account can be used for things like medical care, housing, education, and transportation. There are limits on how much you can save each year, but the money grows tax-free [3].
If your income or resources change, you must report it to Social Security and Medicaid. Failing to report changes can lead to overpayments and penalties. You can report changes online, by phone, or in person. If you get an overpayment, you may have to pay it back, but you can ask for a waiver if it was not your fault [6].
Local agencies and the Kentucky Disability Resource Guide offer free help with benefit applications. Call 1-800-772-1213 or visit a local office for support.
Yes, children with Williams Syndrome may qualify for SSI if their condition causes serious health or developmental problems and their family has low income. SSI can help pay for medical care and daily living costs [9].
In 2025, the maximum monthly SSI payment is $914 for an individual. To qualify, your income and resources must be below certain limits set by Social Security. These limits change each year [3].
You can apply for Medicaid waivers through the Kentucky Department for Medicaid Services or a local Area Developmental Disability Board. They can help you apply for home and community-based services for people with developmental disabilities [2].
Yes, adults with Williams Syndrome may qualify for SSDI if they have a severe disability that stops them from working and have paid into Social Security through work. The amount you get depends on your work history [9].
An ABLE account is a tax-advantaged savings account for people with disabilities. In Kentucky, you can use it to save for disability-related expenses without losing SSI or Medicaid benefits. The account can be used for things like medical care, housing, and education [3].
Yes, you must report any changes in your income or resources to Social Security and Medicaid. Failing to report changes can lead to overpayments and penalties. You can report changes online, by phone, or in person [6].
This guide is for informational purposes only and is not legal or financial advice. Always consult with a qualified professional for personalized guidance.
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Children with Williams Syndrome may get special education services, early intervention, therapy, and Medicaid waivers. These services help children develop skills and live at home instead of in institutions [2].
Yes, you can work while getting SSI or SSDI, but there are limits on how much you can earn. If you earn more than the SGA limit ($1,620 per month in 2025 for non-blind individuals), you may lose your benefits [3][9].
SSI is for people with low income and limited resources who have a disability. SSDI is for people who worked and paid into Social Security but now have a disability. Both programs provide monthly cash payments, but the rules are different [5].
You can get help applying for benefits from local agencies, the Kentucky Disability Resource Guide, or by calling Social Security at 1-800-772-1213. Many agencies offer free help with the application process [2].
