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Kentucky • Rare/Genetic
Rett Syndrome is a rare genetic disorder that can qualify individuals for federal and state disability benefits in Kentucky. This guide explains eligibility, how to apply, and what programs are available.
To qualify for Social Security Disability Insurance (SSDI), you must have worked and paid Social Security taxes, and be unable to work due to a disability. For Supplemental Security Income (SSI), you must have limited income and resources, and be disabled, blind, or age 65 or older. Both programs require a medical condition that severely limits your ability to work or function. Rett Syndrome is listed as a Compassionate Allowances condition, which means it can qualify for faster approval. The Social Security Administration (SSA) uses strict medical and financial criteria for both programs. [^1][^2][^3]
In Kentucky, children and adults with Rett Syndrome may qualify for Medicaid waivers, which provide home and community-based services. These waivers help cover costs for therapies, personal care, and other supports. Kentucky also offers ABLE accounts for people with disabilities, which allow tax-free savings for disability-related expenses. Families may also qualify for the Kentucky Transitional Assistance Program (K-TAP) if they have children and meet income requirements. [^5][^6][^7]
Kentucky residents with disabilities can open ABLE accounts to save for disability-related expenses. These accounts allow tax-free savings and do not affect SSI or Medicaid benefits. Visit kyable.org to apply. [^6]
If your income or employment changes, report it to SSA and Kentucky Medicaid to avoid overpayments. Overpayments can result in repayment or loss of benefits. [^10]
Contact your local Social Security office or Kentucky Medicaid for help with applications. You can also get free help from a disability benefits counselor.
Rett Syndrome is a rare genetic disorder that affects brain development, mostly in girls. It causes severe physical and cognitive disabilities. [^1]
Yes, Rett Syndrome is listed as a Compassionate Allowances condition, which means it can qualify for faster approval for SSI and SSDI. [^1]
Kentucky offers Medicaid waivers, ABLE accounts, K-TAP, and health insurance through the state exchange for people with Rett Syndrome. [^5][^6][^7]
You can apply for SSI/SSDI online at ssa.gov or by phone. You will need medical records and proof of income. [^1]
A Medicaid waiver is a program that provides home and community-based services for people with disabilities, including therapies and personal care. [^5]
Yes, but there are limits on how much you can earn. Exceeding the Substantial Gainful Activity (SGA) limit can affect your benefits. [^3]
An ABLE account is a tax-free savings account for people with disabilities. It does not affect SSI or Medicaid benefits. [^6]
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current information.
Report changes to SSA and Kentucky Medicaid to avoid overpayments. Overpayments can result in repayment or loss of benefits. [^10]
K-TAP is a monthly cash benefit for families with children that also helps parents find work. [^7]
Yes, you can get help from SSA, Kentucky Medicaid, or a disability benefits counselor. [^1]
