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Kentucky • Rare/Genetic
People with Prader-Willi Syndrome in Kentucky may qualify for federal benefits like SSI and SSDI, plus state programs for healthcare, cash assistance, and support services. Eligibility depends on age, income, and how the condition affects daily life.
To qualify for Supplemental Security Income (SSI), you must have a disability that limits your ability to work, low income, and limited resources. For Social Security Disability Insurance (SSDI), you need a qualifying disability and enough work credits. Prader-Willi Syndrome is considered a disability if it causes severe limitations in daily activities or work. Children with Prader-Willi Syndrome may qualify for SSI if their condition is severe and meets SSA’s criteria. Adults with Prader-Willi Syndrome who became disabled before age 22 may get benefits as a Disabled Adult Child on a parent’s Social Security record, even if they never worked[6][8].
In 2025, the Substantial Gainful Activity (SGA) limit is $1,620 per month for non-blind individuals and $2,700 for blind individuals. Earning above this limit may affect eligibility for SSDI[5][8].
In Kentucky, people with Prader-Willi Syndrome may qualify for Medicaid waivers that provide home and community-based services, such as personal care, therapy, and support for families. These waivers help people live at home instead of in institutions. Children with Prader-Willi Syndrome may also qualify for Kentucky’s Medicaid program if their family meets income guidelines. Adults with Prader-Willi Syndrome who receive disability retirement benefits from Kentucky Public Pensions Authority may see those benefits reduced if they also get Social Security disability or Workers’ Compensation. Kentucky also offers programs like the Kentucky Transitional Assistance Program (K-TAP) for families with children who have disabilities[4][7].
Kentucky’s public assistance programs aim to support families with food, cash, and medical help. If you have Prader-Willi Syndrome, you may qualify for these programs based on your income and how your condition affects your daily life[2].
ABLE accounts let people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Kentucky offers ABLE accounts through the KY ABLE program. You can save up to $18,000 per year, and the first $100,000 is not counted for SSI eligibility[3].
You must report changes in income, health, or living situation to Social Security and Kentucky agencies. Failing to report changes can lead to overpayments and loss of benefits. If you get an overpayment, contact the agency to set up a repayment plan[4].
Contact your local Social Security office or Kentucky Department for Medicaid Services for help with applications. Many agencies offer free assistance to people with disabilities.
Yes, a child with Prader-Willi Syndrome may qualify for SSI if their condition is severe and meets Social Security’s criteria. The child must have low income and limited resources. Apply through Social Security with medical records and proof of income[1][6].
Prader-Willi Syndrome may qualify for SSDI if it limits your ability to work and you have enough work credits. Adults who became disabled before age 22 may get benefits as a Disabled Adult Child on a parent’s Social Security record[6][8].
Kentucky offers Medicaid waivers for home and community-based services, such as personal care, therapy, and family support. These waivers help people with Prader-Willi Syndrome live at home instead of in institutions[2].
Contact Kentucky’s Department for Medicaid Services to apply for Medicaid waivers. You’ll need medical records and proof of income. The agency will review your case and determine eligibility for home and community-based services[2].
Yes, you can work while getting SSI or SSDI, but there are limits. In 2025, earning more than $1,620 per month may affect SSDI eligibility. SSI has different rules for earned income[5][8].
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most current rules and eligibility.
In 2025, the maximum monthly SSI payment is $914 for individuals. Income and resources must be low to qualify. The exact limit depends on your situation and other benefits you get[1].
Yes, adults with Prader-Willi Syndrome may qualify for SSI, SSDI, or Medicaid waivers if their condition limits work or daily activities. Adults who became disabled before age 22 may get benefits as a Disabled Adult Child on a parent’s Social Security record[6][8].
An ABLE account lets people with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. Kentucky offers ABLE accounts through the KY ABLE program. You can save up to $18,000 per year[3].
Report changes in income, health, or living situation to Social Security and Kentucky agencies. Failing to report changes can lead to overpayments and loss of benefits. If you get an overpayment, contact the agency to set up a repayment plan[4].
Kentucky offers the Kentucky Transitional Assistance Program (K-TAP) for families with children who have disabilities. K-TAP provides monthly cash benefits and helps parents find work. Families may also qualify for Medicaid waivers and other public assistance programs[7].
