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Kentucky • Neurodegenerative
People with Huntington’s Disease in Kentucky may qualify for federal and state benefits, including SSI, SSDI, Medicaid, and work incentives. This guide explains eligibility, how to apply, and what support is available.
To qualify for federal disability benefits, you must have a medical condition that prevents you from working for at least 12 months or is terminal. Huntington’s Disease is a Compassionate Allowances (CAL) condition, which means the Social Security Administration (SSA) fast-tracks applications for people with this diagnosis [1].
For Social Security Disability Insurance (SSDI), you need enough work credits. Most adults need 40 credits, with 20 earned in the last 10 years before your disability began [7].
For Supplemental Security Income (SSI), you must have limited income and resources. SSI is for people with disabilities, seniors, or those with low income and assets [6].
Both programs require medical proof of disability. Huntington’s Disease is recognized as a severe condition, so approval is often faster [1].
In Kentucky, people with Huntington’s Disease may qualify for Medicaid, Medicaid waivers, and other state programs. Medicaid provides health coverage for people with disabilities who meet income and asset limits. Kentucky also offers Medicaid waivers for home and community-based services (HCBS), which can help people with Huntington’s Disease live at home instead of in institutions [2].
Kentucky’s ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. You can use ABLE funds for housing, education, transportation, and other expenses [2].
If you receive disability retirement from Kentucky Public Pensions Authority, your benefits may be reduced if you also get Social Security disability or Workers’ Compensation [4].
Kentucky’s public assistance programs also help families with children, including those with disabilities, with cash and medical assistance [2].
Kentucky ABLE accounts let people with disabilities save money without losing SSI or Medicaid benefits. You can use ABLE funds for housing, education, transportation, and other expenses. To open an ABLE account, visit the Kentucky ABLE program website [2].
For SSI in 2025, the federal income limit is $914 per month for an individual. For SSDI, there is no income limit, but you must not earn more than the Substantial Gainful Activity (SGA) limit, which is $1,620 per month in 2025 ($2,700 if you’re blind) [3].
For Medicaid in Kentucky, income and asset limits vary based on household size and program. Generally, you must have low income and limited assets to qualify [2].
You must report changes in income, work, or health to Social Security and Medicaid to avoid overpayments. If you fail to report changes, you may have to repay benefits. For more information, see the guide on Avoiding Overpayments & Reporting Changes [6].
Huntington’s Disease is a Compassionate Allowances (CAL) condition, so your SSI/SSDI application will be processed quickly by the Social Security Administration.
Kentucky Medicaid waivers can help you get home and community-based services, so you can live at home instead of in an institution.
Yes, Huntington’s Disease is a Compassionate Allowances (CAL) condition, which means the Social Security Administration fast-tracks applications for people with this diagnosis. You can qualify for SSI or SSDI if your condition prevents you from working for at least 12 months or is terminal [1].
You can apply for SSI or SSDI online at SSA.gov, by phone at 1-800-772-1213, or in person at a local Social Security office. Huntington’s Disease is a CAL condition, so your application will be processed quickly [1].
Kentucky offers Medicaid for people with disabilities who meet income and asset limits. Medicaid covers health care, habilitation services, and home and community-based services (HCBS) waivers, which help people live at home instead of in institutions [2].
Yes, there are work incentives that let you keep benefits while working. For example, Expedited Reinstatement (EXR) lets you get benefits restarted quickly if your income drops below the SGA limit. You can also deduct Impairment Related Work Expenses (IRWEs) from your earnings [6].
A Medicaid waiver lets people with disabilities get services at home instead of in institutions. In Kentucky, contact the Department for Medicaid Services to apply for a waiver. Services may include personal care, respite care, and home modifications [2].
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most up-to-date information.
For SSI in 2025, the federal income limit is $914 per month for an individual. SSDI payments vary based on your work history and earnings. The Substantial Gainful Activity (SGA) limit is $1,620 per month in 2025 ($2,700 if you’re blind) [3].
An ABLE account lets people with disabilities save money without losing SSI or Medicaid benefits. You can use ABLE funds for housing, education, transportation, and other expenses. To open an ABLE account, visit the Kentucky ABLE program website [2].
Yes, you must report changes in income, work, or health to Social Security and Medicaid to avoid overpayments. If you fail to report changes, you may have to repay benefits [6].
Yes, you can get both SSI and SSDI if you meet the eligibility requirements for both programs. SSI is for people with low income and assets, while SSDI is for people who have worked and paid Social Security taxes [1].
If you receive a Workers’ Compensation settlement while getting disability retirement benefits from Kentucky Public Pensions Authority, your benefits may be reduced if the combined income from KPPA, Social Security, and Workers’ Compensation exceeds 100% of your final rate of pay [4].
