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Kansas • Rare/Genetic
People with Rett Syndrome in Kansas can access federal and state disability benefits, including SSI, SSDI, Medicaid, and ABLE accounts. This guide explains eligibility, how to apply, and key resources for families.
Rett Syndrome is a rare genetic disorder that often causes severe cognitive and physical disabilities. The Social Security Administration (SSA) recognizes Rett Syndrome as a qualifying condition for disability benefits under its Compassionate Allowances program, which speeds up approval for certain serious conditions. To qualify for Supplemental Security Income (SSI) or Social Security Disability Insurance (SSDI), you must have a diagnosis of Rett Syndrome and meet SSA’s medical and financial criteria. SSI is for people with limited income and resources, while SSDI is for those who have worked and paid Social Security taxes. Both programs provide monthly cash payments and may include access to Medicaid or Medicare.
For more details, see the SSA’s Compassionate Allowances page: ssa.gov/compassionateallowances.
In Kansas, people with Rett Syndrome may qualify for additional state benefits and services. The Kansas Medical Assistance Program (KanCare) offers Medicaid coverage for eligible individuals with disabilities, including those with Rett Syndrome. Medicaid can cover medical care, therapies, and home and community-based services (HCBS) through waivers. Kansas also provides ABLE accounts, which allow people with disabilities to save money without losing eligibility for SSI or Medicaid. The Kansas Department of Commerce and local agencies offer employment support, assistive technology, and financial planning for people with disabilities. To qualify for state programs, you must meet Kansas-specific income and disability requirements.
For more information, visit the Kansas Medicaid website: kancare.ks.gov.
For more details, see the SSA application page: ssa.gov/apply and the KanCare application page: kancare.ks.gov.
For more information, see the SSA website: ssa.gov.
For more information, see the Kansas ABLE Savings Plan: kansasstatetreasurer.ks.gov/able_savings.html and the Kansas Department of Commerce: kansascommerce.gov.
ABLE accounts allow people with disabilities to save money for qualified disability expenses without losing eligibility for SSI or Medicaid. In Kansas, you can open an ABLE account through the Kansas ABLE Savings Plan. The state offers an empowerment grant of $100 for new accounts opened in 2025. There is no limit on how much you can save, but contributions are capped at the annual gift tax exclusion ($18,000 in 2025). Funds can be used for housing, education, transportation, and other disability-related expenses.
For more information, visit: savewithable.com/ks.
For SSI, the maximum monthly payment in Kansas is $943 in 2024. The SSA subtracts all other monthly income from this amount to determine your payment. For Medicaid (KanCare), eligibility is based on income and disability. Income limits vary by program and household size. For ABLE accounts, there is no income limit, but contributions are capped at the annual gift tax exclusion.
For more details, see the SSA website: ssa.gov and the KanCare website: kancare.ks.gov.
It is important to report any changes in income, resources, or medical status to avoid overpayments and maintain eligibility for benefits. Overpayments can result in repayment requirements or loss of benefits. Report changes to the SSA for SSI/SSDI and to KanCare for Medicaid. Keep records of all communications and changes.
For more information, see the SSA reporting page: ssa.gov and the KanCare reporting page: kancare.ks.gov.
Contact your local Department for Children and Families office or call the SSA at 1-800-772-1213 for help with applications and questions.
Yes, Rett Syndrome is recognized by the Social Security Administration as a qualifying condition for SSI and SSDI. Kansas also offers Medicaid and other state benefits for people with disabilities.
You can apply online at SSA.gov, by phone at 1-800-772-1213, or in person at a local SSA office. You will need medical records and proof of income.
The average monthly SSI payment in Kansas is $568, with a maximum of $943 in 2024. The actual amount depends on your income and resources.
Yes, Kansas offers ABLE accounts for people with disabilities. You can save for qualified expenses without losing SSI or Medicaid eligibility. Kansas provides a $100 grant for new accounts in 2025.
Kansas Medicaid (KanCare) covers medical care, therapies, and home and community-based services for people with disabilities, including those with Rett Syndrome.
Assistive Technology for Kansas (ATK) connects people with disabilities to assistive technology resources. You can also access loans and savings through K-LOAN.
Disclaimer: This guide is for informational purposes only. Always consult official sources for the most current information and eligibility requirements.
Yes, the Ticket to Work program helps people with disabilities prepare for, find, and maintain employment without losing benefits. Work incentives are available for SSI and SSDI recipients.
You must report changes in income to the SSA and KanCare to avoid overpayments and maintain eligibility. Keep records of all changes and communications.
Yes, the Kansas Department of Commerce and local agencies offer employment support, vocational rehabilitation, and job placement for people with disabilities.
Report changes to the SSA for SSI/SSDI and to KanCare for Medicaid. You can do this online, by phone, or in person. Keep records of all communications.
