Huntington’s Disease Benefits in Idaho

To qualify for Social Security Disability Insurance (SSDI), you must have a qualifying disability and enough work credits. For Huntington’s Disease, the Social Security Administration (SSA) recognizes it as a severe, progressive condition that meets their definition of disability. You generally need 40 work credits, with 20 earned in the last 10 years before your disability began. For Supplemental Security Income (SSI), you must have limited income and resources, and meet the SSA’s definition of disability. Children with Huntington’s Disease may also qualify for benefits if their parent is receiving Social Security benefits. In 2025, the SGA (Substantial Gainful Activity) limit for non-blind individuals is $1,620 per month, and $2,700 for blind individuals. Earning above this may affect your benefits [1].

In Idaho, adults with Huntington’s Disease may qualify for Medicaid if they meet financial eligibility and the ICF/IID (Intermediate Care Facility/Intellectually Disabled) level of care. This means your disability must be chronic, appear before age 22, and substantially limit your ability to function in at least three major life activities. Huntington’s Disease is not specifically listed, but if it causes intellectual or functional limitations similar to those listed (like cerebral palsy or epilepsy), you may qualify. You must also complete a Medicaid application and a separate assessment for developmental disability services. Idaho also offers Medicaid waivers for home and community-based services, which can help you get support in your own home [2].

• Check if you meet SSDI or SSI eligibility.
• Gather medical records showing Huntington’s Disease diagnosis and functional limitations.
• Apply for SSDI/SSI online, by phone, or at a local Social Security office.
• If approved, apply for Medicaid and developmental disability services.
• Contact Idaho Disability Determinations Service for help with your application.

• Step 1: Review SSDI and SSI eligibility requirements. SSDI requires work credits; SSI requires low income and resources.
• Step 2: Collect medical evidence, including genetic testing, neurologist reports, and documentation of functional limitations.
• Step 3: Apply for SSDI or SSI online at ssa.gov, by phone at 1-800-772-1213, or in person at a local Social Security office.
• Step 4: If approved, apply for Medicaid through Idaho Health and Welfare. You may need to complete a separate assessment for developmental disability services.
• Step 5: If you need home and community-based services, apply for a Medicaid waiver.
• Step 6: Report any changes in income, work, or medical status to avoid overpayments.
• Step 7: Consider opening an ABLE account to save money without losing benefits.
• Step 8: Contact Idaho Disability Determinations Service for help with the medical review process [1][2][3].

• Social Security Disability Insurance (SSDI): Provides monthly payments and Medicare after 24 months for those with a qualifying work history.
• Supplemental Security Income (SSI): Provides monthly payments and Medicaid for those with limited income and resources.
• Medicare: Available after 24 months of SSDI; covers medical care.
• Medicaid: Available with SSI or through state programs for those with low income.
• Work Incentives: Programs like Ticket to Work and Plan to Achieve Self-Support (PASS) help you work while keeping benefits [1][5].

• Medicaid for Adults with Developmental Disabilities: Idaho offers Medicaid coverage for adults who meet financial and medical criteria, including those with Huntington’s Disease if it causes significant functional limitations.
• Medicaid Waivers (HCBS): Idaho provides home and community-based services waivers for adults with developmental disabilities, allowing support in your own home.
• Disability Determinations Service: Idaho DDS reviews medical evidence for SSDI and SSI claims and helps applicants through the process.
• ABLE Accounts: Idaho residents can open ABLE accounts to save for disability-related expenses without losing benefits [2][3][4].

ABLE accounts let Idaho residents with disabilities save money for disability-related expenses without losing SSI or Medicaid benefits. You can contribute up to $18,000 per year (2025 limit). Funds can be used for housing, education, transportation, and other qualified expenses. Learn more about Idaho ABLE accounts and how to open one [4].

For SSI in 2025, the federal income limit is $943 per month for an individual and $1,415 for a couple. Idaho may have additional state supplements. For SSDI, there is no income limit, but you cannot earn more than the SGA limit ($1,620/month for non-blind, $2,700/month for blind) without risking your benefits. Medicaid income limits vary by program and household size [1][5].

You must report changes in income, work, or medical status to the SSA and Idaho Health and Welfare. Failing to report can result in overpayments and penalties. If you receive an overpayment, contact the agency to set up a repayment plan. Learn more about avoiding overpayments and reporting changes [5].

• Idaho Disability Determinations Service
  Phone: 208-334-3700

  Website

  For help with SSDI/SSI medical review and application questions.
• Idaho Health and Welfare
  Phone: 1-877-456-1233

  Website

  For Medicaid and developmental disability services applications.

• Can I get SSDI for Huntington’s Disease in Idaho?

  Yes, Huntington’s Disease is a qualifying disability for SSDI. You must have enough work credits and meet the SSA’s definition of disability. Contact Idaho Disability Determinations Service for help with your application [1][3].

• Can I get SSI for Huntington’s Disease in Idaho?

  Yes, if you have limited income and resources. SSI provides monthly payments and Medicaid. You must also meet the SSA’s definition of disability. Apply through the SSA or Idaho Health and Welfare [1][2][5].

• Does Idaho have Medicaid waivers for Huntington’s Disease?

  Yes, Idaho offers Medicaid waivers for adults with developmental disabilities, including those with Huntington’s Disease if it causes significant functional limitations. These waivers provide home and community-based services [2].

• How do I apply for Medicaid in Idaho with Huntington’s Disease?

  First, apply for Medicaid through Idaho Health and Welfare. If approved, complete a separate assessment for developmental disability services. You must meet financial and medical criteria [2].

• What is the SGA limit for Huntington’s Disease in Idaho?

  The SGA limit for non-blind individuals is $1,620 per month in 2025. For blind individuals, it is $2,700 per month. Earning above this may affect your SSDI or SSI benefits [1][5].

• Can I work while getting SSDI or SSI for Huntington’s Disease?

  Yes, but you cannot earn more than the SGA limit without risking your benefits. Work incentives like Ticket to Work and PASS can help you work while keeping benefits [1][5].