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Hawaii • Rare/Genetic
People with Rett Syndrome in Hawaii can access federal and state disability benefits, including SSI, SSDI, Medicaid waivers, and ABLE accounts. Hawaii also offers Temporary Disability Insurance (TDI) for short-term income replacement. This guide explains eligibility, how to apply, and key resources.
Rett Syndrome is a rare genetic disorder that often qualifies for federal disability benefits. To get Supplemental Security Income (SSI), you must have limited income and resources, and meet SSA’s definition of disability. For Social Security Disability Insurance (SSDI), you need a qualifying work history. Both programs require medical proof of disability, such as a diagnosis and functional limitations. Children with Rett Syndrome may also qualify for SSI or Childhood Disability Benefits (CDB) if a parent has a qualifying work history. [^1]
SSI and SSDI benefits are available to people of all ages, but eligibility rules differ. SSI is needs-based, while SSDI is based on work credits. Both programs offer monthly payments and may provide access to Medicaid or Medicare. [^1]
In Hawaii, people with Rett Syndrome may qualify for Medicaid waivers, which provide home and community-based services (HCBS) for people with disabilities. These waivers help cover costs for personal care, therapy, and other supports. Hawaii also offers Temporary Disability Insurance (TDI), which provides partial wage replacement for up to 26 weeks if you cannot work due to a non-work-related illness or injury. To qualify for TDI, you must have at least 14 weeks of Hawaii employment with 20+ hours per week. [^2]
Hawaii’s TDI program is funded by employer or shared contributions. The maximum weekly benefit in 2025 is $837, and the maximum employee contribution is $7.21 per week. [^2] Medicaid waiver eligibility depends on income, assets, and functional needs. [^3]
ABLE accounts allow people with disabilities to save money without losing SSI or Medicaid benefits. In Hawaii, you can open an ABLE account through the national ABLE program. Funds can be used for disability-related expenses, such as medical care, education, and housing. [^4]
SSI has strict income and resource limits. In 2024, the federal SSI payment is up to $943/month for an individual. SSDI payments vary based on work history. Medicaid waiver income limits depend on the specific waiver program. [^1]
If you receive too much SSI or SSDI, you must report it and may have to repay the overpayment. Report changes in income, resources, or living situation to avoid overpayments. [^5]
Contact the Hawaii Department of Health or your local Social Security office for help with applications and eligibility questions.
Yes, Rett Syndrome often qualifies for federal SSI and SSDI benefits, as well as Hawaii Medicaid waivers and ABLE accounts. Medical proof of disability is required for all programs.
You can apply online at ssa.gov, by phone at 1-800-772-1213, or in person at a local Social Security office. You’ll need medical records and proof of income.
Hawaii TDI provides partial wage replacement for up to 26 weeks if you cannot work due to a non-work-related illness or injury. The maximum weekly benefit in 2025 is $837.
Contact the Hawaii Department of Health Disability and Aging Services Division. Submit an application and supporting documents, such as medical records and proof of income.
An ABLE account is a tax-advantaged savings account for disability-related expenses. You can open one through the national ABLE program, even if you live in Hawaii.
SSI has strict income and resource limits. In 2024, the federal SSI payment is up to $943/month for an individual. SSDI payments vary based on work history.
Disclaimer: This guide is for informational purposes only. Always check with official agencies for the most up-to-date eligibility and application requirements.
Report changes in income, resources, or living situation to the Social Security Administration to avoid overpayments. You can report changes online, by phone, or in person.
Yes, if you qualify for SSI, you may also qualify for Medicaid. Medicaid provides health coverage for low-income individuals with disabilities.
If your claim is denied, you have 20 days to appeal. Submit your appeal to the Hawaii Department of Labor and Industrial Relations with evidence such as pay slips or check stubs.
Yes, SSI and SSDI offer work incentives that allow you to work and still receive benefits. These include trial work periods and continued Medicaid coverage.
