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Florida • Neurodegenerative
People with Amyotrophic Lateral Sclerosis (ALS) in Florida may qualify for federal and state disability benefits, including Social Security Disability Insurance (SSDI), Supplemental Security Income (SSI), Medicaid waivers, and ABLE accounts. This guide explains eligibility, how to apply, and key resources.
To qualify for Social Security Disability Insurance (SSDI) with ALS, you must have a confirmed diagnosis and be unable to work. The Social Security Administration (SSA) considers ALS a Compassionate Allowances condition, meaning applications are processed quickly. You must have paid enough Social Security taxes through work to earn required work credits. For Supplemental Security Income (SSI), you must have limited income and resources, and meet medical criteria. In 2025, the Substantial Gainful Activity (SGA) limit is $1,620 per month for non-blind individuals and $2,700 for blind individuals. If your earnings are above these limits, you generally cannot qualify for SSDI or SSI. Family members may also be eligible for dependent benefits. [^1][^2][^3]
In Florida, the Division of Disability Determinations reviews medical eligibility for federal disability programs, including SSDI and SSI. Florida also offers Medicaid waivers for people with disabilities, such as the Home and Community-Based Services (HCBS) waiver, which can provide support for those with ALS. To qualify for state programs, you must meet both federal and state criteria. Florida’s Agency for Persons with Disabilities (APD) may provide additional services, but eligibility is based on severity and need. Special needs shelters and emergency registries are available for those with ALS who require assistance during disasters. [^4][^5]
Federal programs for ALS include:
Florida offers several programs for people with ALS:
ABLE accounts allow people with disabilities to save money without losing eligibility for SSI, Medicaid, or other benefits. In Florida, you can open an ABLE account through the state’s ABLE United program. Funds can be used for disability-related expenses like medical care, housing, and education. Contributions are limited each year, and there are tax advantages. [^6]
For 2025, the SGA limit is $1,620 per month for non-blind individuals and $2,700 for blind individuals. Earnings above these limits may affect eligibility for SSDI and SSI. SSI also has strict income and resource limits. Family income may be considered for children’s SSI eligibility. [^1][^2][^3]
It’s important to report any changes in income, work, or health status to SSA and Florida agencies. Failing to report changes can lead to overpayments, which must be repaid. Overpayments can happen if you earn more than allowed or if your situation changes. Always keep records and respond to agency requests. [^7]
ALS is a Compassionate Allowances condition, so Social Security applications are processed quickly. Make sure to mention your ALS diagnosis when applying.
People with ALS who receive SSDI qualify for Medicare immediately, without the usual 24-month waiting period.
The SGA limit for non-blind individuals in 2025 is $1,620 per month. For blind individuals, it is $2,700 per month. Earnings above these limits may affect eligibility for SSDI and SSI.
ALS applications are fast-tracked by the Social Security Administration. Decisions are usually made much quicker than for other disabilities, often within weeks.
Yes, people with ALS who receive SSDI qualify for Medicare immediately, without the usual 24-month waiting period.
Florida’s Medicaid Home and Community-Based Services (HCBS) waiver provides support for home care, personal care, and other services for people with ALS.
You can work, but your earnings must be below the SGA limit. If you earn more than $1,620 per month (non-blind) or $2,700 (blind), you may lose benefits.
You can apply for Medicaid waivers through the Florida Agency for Persons with Disabilities. Eligibility is based on severity and need, and you may need to be on a waiting list.
Disclaimer: This guide is for informational purposes only and does not constitute legal or financial advice. Always consult with a qualified professional for personalized guidance.
An ABLE account is a tax-advantaged savings account for disability-related expenses. It allows you to save money without losing eligibility for SSI, Medicaid, or other benefits.
Yes, Florida has special needs shelters and an emergency registry for people with medical needs, including ALS. Registering ensures you get help during disasters.
If your application is denied, you can appeal the decision. The appeals process includes several levels, and you may want to seek help from a disability advocate.
Yes, you must report any changes in income, work, or health status to SSA and Florida agencies. Failing to report changes can lead to overpayments, which must be repaid.
